If you have neurofibromatosis (NF), know someone who does, or are looking for information regarding NF, you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with NF in their lives understands.
NF Upper Midwest is dedicated to supporting the Minnesota, North Dakota, and South Dakota NF communities by raising awareness, education, and support for those affected by neurofibromatosis. We host informational forums on relevant topics, provide information and referral, sponsor kids to go to NF camp, award grants to attend NF related conferences, offer financial assistance to individuals or to family member with NF to assist with issues or emergencies related to NF, and lobby to ensure continued federal funding of NF related research. Please JOIN US.