You Can Help  


 Board of Directors

Aron Buchanan, President

Aron joined the board in January, 2010. Aron is a program and policy analyst with the State of Minnesota, in the Aging and Adult Services Department. He's happily married to Megan Buchanan and the father of two sons: ten year-old, Stone, who has NF 1, and nine year-old, Jonah. Aron holds a Master's of Public and Non-Profit Administration and Bachelor's of Social Work from Metropolitan State University. His interests include camping, music festivals, reading, playing guitar, and barbecuing.

Sheila Pajerski, Treasurer

Sheila joined the board in June of 2015. Sheila is originally from Wisconsin and admittedly, a Packer fan. She received her undergrad from the University of MN Duluth and her graduate degree in finance from the University of St. Thomas. Sheila works at US Bank within the treasury department and is married to Mark, a full-time and very busy dad! Sheila and Mark have three children - Kayla, Lucas and MJ. Kayla has a rare chromosome disorder making genetic disorders very dear to their hearts. During their spare time they enjoy a number of outdoor activities with the kids.

Steve Hewitt, Board Member

Steve joined the board in June, 2015. He is the General Manager of Verscene, A Division of Liberty Diversified International.& Steve is married to Kristyn, a dedicated amateur photographer and exceptional mother. They have four terrific children. Their youngest daughter has NF1. Steve received his B.S. Degree in Psychology from the University of North Dakota. The majority of Steve’s free time is spent with his family and the ever expanding activities his two young daughters dive into on any given day.

Johnny Leuthard, Board Member

Originally from Fairfax, Virginia, NF Upper Midwest's newest board member, Johnny Leuthard, has lived in Minnesota most of his life. Johnny joined the board of directors in May 2012. Johnny is a Windows System Engineer Consultant with over 25 years of IT experience and still very much enjoys his work. Johnny has NF 1 and looks to share his experience with neurofibromatosis with the greater NF community. Johnny considers himself kind of a foodie; he likes to explore new and fun places to eat, hang out with friends, and though he doesn't do it often, he enjoys yoga quite a bit.

Renee Mark, Board Member

Renee Mark has been a member of the board since October 2011. Renee (who has NF 1) stays busy as a full time stay at home mom to three daughters, and is married to Ron, a wickedly funny professional children's story teller. Their youngest daughter has NF 1. Renee enjoys trying new recipes, family fun nights, and nights out with friends.

Claire Chamberlin, Board Member

Claire joined the board in October of 2015. She has lived in Minneapolis all of her life, with a brief foray into St. Paul for college. For the past ten years she has helmed Planet Claire Creative, a firm focused on website design and development. She holds a BA in history from Hamline University.

Nick Mattison, Board Member

Nick joined the board in September, 2016. He is the Director of Analytics at Regions Hospital in St. Paul. Nick holds degrees from the Universities of Wisconsin and Minnesota, and is passionate about healthcare and helping others. In his spare time, Nick enjoys spending time with his wife Nikki and their dog, Russell, keeping up with sports teams and spending time outside.

Jennifer Roth Wryk, Board Member

Jenn is a native Minnesotan who has worked in healthcare for over 15 years on both the financial and technical sides. She received an AAS in Health Information Technology and a BA in Healthcare Management from Saint Catherine’s University in Saint Paul, MN as well as her Masters in Organizational Leadership from Saint Mary’s University of Minnesota.

Jenn started young volunteering her time in her church community for festivals, pancake breakfasts and other events with her family. She continued her love of charitable work into her twenties, working with the JCI (Jaycees) organization and many great opportunities to give back to her community while in college. These experiences gave her a deep appreciation for how nonprofits seek to improve the quality of life for individuals and lead to her being a co-founder of Angels Kaleidoscope. Working with these wonderful volunteer organizations lead Jenn to finding her passion in helping others grow, find support, and make connections to others within their community.


get in touch

1430 Concordia Ave, #40241
        St. Paul, MN 55104
(651) 204-0067
Send us an email
Volunteer Info
Join Our Mailing List

Follow us on Facebook

you can get involved

There are so many ways to help create more awareness, education and support for those affected by neurofibromatosis. You can make a difference!

» make a donation
» join us
» get involved
» learn about grants

CONTACT: 1430 Concordia Avenue, #40241, Saint Paul, MN 55104 | (651) 204-0067   Send us an email