Community Meet-ups

NF Upper Midwest has informal gatherings throughout the year to help people affected by NF connect with the community.

What is Neurofibromatosis?

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States and affects more than 100,000 Americans. This makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.

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